Question

Partnering With Families Of Toddlers, which of the following statements is true?

1) Acceptance of the diagnosis can take years, as frequent reminders of the disability cause families to reexperience the grief.
2) Finding out that our daughter Ella had Down syndrome was like being told that the baby we dreamed of had died and now we had a child we knew absolutely nothing about.
3) There's no good way to tell you. Your baby has Down syndrome," said the pediatrician. My world instantly stopped, and I felt a black fog closing in. I couldn't move or breathe or speak.
4) The involvement of families in the diagnosis, depression, and acceptance of the disability.

Answer 1

Acceptance of a Down syndrome diagnosis can take years as families may repeatedly experience grief. Down syndrome, encompassing intellectual and other health issues, is more likely in children born to women over 35. Advocacy for inclusion and educating communities on living with disabilities are critical for social change.

Step-by-step explanation:

When partnering with families of toddlers with disabilities such as Down syndrome, it's important to understand the emotional journey that parents may go through upon receiving the diagnosis. Statement 1 is true as acceptance of the diagnosis can indeed take years, due to frequent reminders of the disability that may cause families to reexperience grief. It is also essential to be aware that Down syndrome (47 XY +21) causes intellectual disability along with other potential health issues such as vision problems, congenital heart disease, and a susceptibility to cancer. While the diagnosis can be overwhelming, it is crucial for healthcare providers to discuss the positive aspects of raising a child with Down syndrome and to provide up-to-date information.

The risk of having a child with Down syndrome is significantly higher among women age 35 and older. This is a well-established fact, and rather than being associated primarily with lifestyle factors, the risk is correlated with maternal age. It is also key to recognize that individuals with Down syndrome can lead fulfilling lives and contribute meaningfully to society. By promoting inclusion and visibility, communities can help break down myths and provide better support to individuals with disabilities and their families.

Finally, storytelling and sharing first-hand experiences play an important role in educating people about the realities of living with a disability. These narratives can help illuminate ways in which society can change to promote inclusion for people with disabilities, demonstrating that while some disabilities may not be visible, every individual deserves respect, opportunity, and access to resources that can help them thrive.